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Parents making SENSe of diagnosis and treatment
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What kinds of knowledge do parents need to make sense of their child's diagnosis and treatment?
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When parents go home with their new baby, and instructions on how to manage, what happens next?
What kinds of knowledge about parenting, bodily difference, and health care do parents need to cope well with the challenges ahead?
Research article:
Lundberg, T., Lindström, A., Roen, K., & Hegarty, P. (2016). From knowing nothing to knowing now: Parents’ experiences of caring for their children with Congenital Adrenal Hyperplasia.
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