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Making SENSe of medical information

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How could health professionals help parents, children, and young people make sense of intersex/dsd?

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Studies have repeatedly shown that people who are told about a diagnosis of sex development come away feeling confused, overwhelmed, and unable to recall much of what they were told.
 
How do parents and young people eventually settle on talking about and making sense of this topic?
 
How do the clinical experiences and the lived experience of bodily difference get integrated in day-to-day life?
 
How might health professionals talk with parents, children, and young people in ways that better engage with their day-to-day realities?
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